What would help you?

A place to talk about your experience of living with Dyspraxia

Moderator: Moderator Team

Daniel
Administrator
Posts: 868
Joined: Mon Jan 30, 2006 10:16 pm
Location: London

What would help you?

Post by Daniel »

As adult dyspraxics we seem to be in the position where the outside of full-time education we're particularly poorly served in terms of assistance of any kind.

In an ideal world what would you like to see in place that would help you, be it in terms of work, personally, assessment, transport or anything else?

Dan.
Dyspraxic Adults admin.
donnaf
Power poster
Posts: 272
Joined: Tue Jun 27, 2006 10:48 am
Location: Dudley, West Midlands

Post by donnaf »

Free, easy to obtain assessments would be be nice, for a start!
I get knocked down, but I get up again, you're never ever gonna keep me down :D

Image
rah
Power poster
Posts: 111
Joined: Mon Oct 09, 2006 8:59 pm

Post by rah »

haha i second that!

or perhaps we could cover everything with cotton wool so that when we bump into things, it doesn't hurt? or perhaps i should just wrap myself up ;)

on a more serious note....keyboards with more space between the keys so that i'm not constantly typing in the wrong letters (although i'm sure that something like this is available if i look hard enough).

i can't really think of anything else...i'd love some way of being able to concentrate, or being able to remember things like instructions, but i can't think of any viable ways of sorting those out.
Pooky
Administrator
Posts: 452
Joined: Mon Jan 30, 2006 9:38 pm

Post by Pooky »

Just an easy assessment.

I can't speak for others, but knowing that their are others who suffer similiar problems has helped me no end. I no longer feel that everything is my fault and I must do better.

Would be good to meet up with some peeps.
Shadwell
Moderator
Posts: 935
Joined: Sat Jan 06, 2007 10:24 am
Location: Bridgend, South Wales

Post by Shadwell »

free transport, assessments, and a coffee that isn't out of a machine!!

and as for me then I was never treated right in education, and still not getting any help now, the system s***'s! so how can it be any worse?

I was assigned a social worker, that I never even met, let alone had help from!

teachers calling me thick! or could do a lot better, so why aren't you?

and most of my school life answering questions to people that didn't know what 1+1=!!

so I think I would say everything to how to make the system better!
robyn

Post by robyn »

transport help, partly it costs too much, but sitting on two different, allways late and too crowded busses everyday to go to work is a nightmare. the waiting and sensorary problems there are just too much, also going anywhere new I find a planning nightmare, I can never figure out the right bus route or timings, we should get funding for taxis for that atleast, Im forever gtetting lost or panicy over this, and it limits where I go if I dont have a lift. medical professionals that know what dyspraxia is would help, I hate educating supposedly educated individuals.
jme
Regular Poster
Posts: 96
Joined: Fri Apr 28, 2006 5:52 am

Post by jme »

I'm OK at the moment and cant think of anything i need right now that i dont already have. (living at home helps heaps). a travel allowance would be nice but i dont have the guts to try and apply for one. I have a disabled parking permit + the issues that comes with it...... (feeling anxious if people i know see me and what they think... and worrying that people think im... you now.... )

quite frankly sometimes i just don't have the energy to ask for assistance. If it envolves trying to justify to random strangers thta my disability really is a DISABILITY,-well im just too tired of playing that game. its why i like this board... for a few minutes any day i want i can come here and feel that what i have is REAL and i am NOT CRAZY. I can discuss my issues without trying to justify them. its a huge relief.

I’m a member of CP organisation that is able to provide assistance for stuff… not sure if I will ever have the guts to ask for help if I ever need it. is there a dyspraxia equivalent of something like this?


ps. Dan, what do you think would help you? you asked the question but didn’t add an opinion.
"Success consists of going from failure to failure without loss of enthusiasm."

"Normal refers to someone who hasn’t had enough tests!"
donnaf
Power poster
Posts: 272
Joined: Tue Jun 27, 2006 10:48 am
Location: Dudley, West Midlands

Post by donnaf »

How about a caffeine allowance for the days when we just can't wake up?! I've been living off Pepsi n coffee lately! Or a sedative allowance for when we can't sleep, but the doctor can provide them anyway so I'll just go with a caffeine allowance! \:D/
I get knocked down, but I get up again, you're never ever gonna keep me down :D

Image
Shadwell
Moderator
Posts: 935
Joined: Sat Jan 06, 2007 10:24 am
Location: Bridgend, South Wales

Post by Shadwell »

how about someone that makes the coffee for when you wake up, and it is still hot whenever you decide to wake up!!
Liz944
Super poster
Posts: 829
Joined: Tue Apr 11, 2006 9:59 pm
Location: UK

Post by Liz944 »

As for making coffee in the morning... that what partners and parents are for... :lol:
Daniel
Administrator
Posts: 868
Joined: Mon Jan 30, 2006 10:16 pm
Location: London

Post by Daniel »

jme wrote:ps. Dan, what do you think would help you? you asked the question but didn’t add an opinion.
I think ease of assessments would help us then look forward to understanding our weaknesses and arranging appropriate provision.

Access to the workplace seems to be a biggie too. From Janet's research a few months back it's clear that many dyspraxics are underachieving or unemployed when they often have the intellect for great things but are let down by inflexible workplaces, and a lack of career advice as to what would be suitable avenues of employment. Instead there's lots of hit and miss until eventually we hopefully find something that suits. Hardly ideal.

Dan.
helenahelen
Getting settled in
Posts: 10
Joined: Sat Oct 28, 2006 1:34 pm

Post by helenahelen »

Caffeine on prescription... great idea O:) But I think that cheaper public transport would be the big one for me. Definately. Or at least a subsidised bus/rail scheme that covers everyone unable to drive for whatever reason...
robyn

Post by robyn »

better public transport too, that runs more regularly and later at night for those working shifts
square peg
Getting settled in
Posts: 28
Joined: Mon May 21, 2007 5:43 pm

Post by square peg »

Fitness videos where the demonstrators stand facing the same way as you to minimise left/right confusion, and don't make you do routines or sequences

Bottles that allow only a certain, steady amount of fluid through so I can't choke myself each time I try to drink, or spill them everywhere

Bottle caps padded with something soft but grippable so I don't have to ask other people to open them for me. Or technology to replace caps altogether

The return of velcro as a feasible fashion statement

Social acceptance of baldness in females so I can shave my head and not be expected to do something with the mass of sheeps' wool that seems to grow out of it

A return of classical music to popular culture, so I can enjoy music with friends without having to dance
ice
Getting settled in
Posts: 14
Joined: Mon Jul 16, 2007 9:20 am

Post by ice »

society accepting that we are not stupid would be the biggest help.

after that, sat nav fitted to all cars, good cheap access to driving instrutors with special training(i was lucky to find a good one but it cost be lots although i can only drive an automatic best thing out)

kitchen aids, like kettles that don't spill hot water everywhere or failing that a mat to soak it all up

knifes which only cut food not fingers

plasters which are easier to open
Post Reply