Help Resources List - Updated June 2022

Getting assessed for your dyspraxia, getting help, disability allowance etc.

Moderator: Moderator Team

Post Reply
Tom fod
Administrator
Posts: 2737
Joined: Thu May 12, 2011 9:05 pm
Location: SW UK

Help Resources List - Updated June 2022

Post by Tom fod »

Mental Health, Emotional and mental wellbeing work, studying and coping in general


This is an evolving resource and a bit UK centric for those of you not outside the UK . If you know of anything that should be added, Please do comment below. I can then edit to add and incorporate under the categories below.

Please report any broken or expired links as a comment below


Please post your own favourite links to useful sites and information as comments below
If you have any constructive comments about sites /resources or experiences feel free to add these too.


United Kingdom based

The Dyspraxia Foundation
www.dyspraxiafoundation.org.uk
Helpline Tue - Fri 0900 - 1300 (1pm). 01462 454986 (Helpline service has now resumed.

Dyspraxia and Life: A Free online Magazine containing articles written by Dyspraxic folk. Highly recommended
www.dyspraxialifemagazine.co.uk Regrettably not currently active but worth a read of the articles there

Dyspraxic Help 4 U:
This is a site /initiative created by a friend of mine and has some useful information about disability entitlements and discounts. These may not be applicable for everyone but definitely still worth a look.
https://dyspraxichelp4u.wixsite.com/dyspraxia

Dyspraxia Creative Coaching
Providing specialist One to One and Group Coaching support for Dyspraxic Adults with Interpersonal and organisational challenges, online and in person for those local to Glasgow, to improve wellbeing and confidence under the facilitation of Chris Colebrook (Solution-Focused Coach Practitioner, Dip/PhD)
www.dyspraxiccreativecoaching.co.uk
https://www.facebook.com/groups/708966729937283


Support at or relating to work

SCOPE (UK Disability Organisation)
https://www.scope.org.uk

ACAS
https://www.acas.org.uk. Helpline Mon to Fri 0800 -1800 (6pm) 0300 123 1100

GMB Trade Union
https://www.gmb.org.uk/sites/default/fi ... -guide.pdf

Access to Work
https://www.gov.uk/access-to-work
or visit your local Jobcentre Plus

Genius Within
https://www.geniuswithin.co.uk/neurodiv ... 6b4f8-90b0

Exceptional Individuals Help Neurodverse Individuals and Employers
https://exceptionalindividuals.com

Dyspraxia Specific bits
They do have an indication test though it didn't think I was
https://exceptionalindividuals.com/cand ... quiz-test/


Studying
http://www.diverse-learners.co.uk


Being/becoming a parent
http://www.dyspraxialifemagazine.co.uk/ ... nts-group/

http://www.dyspraxialifemagazine.co.uk/ ... dyspraxia/ (sadly D&L is currently dormant but good article)



More general Mental Health support (UK)

The Samaritans
https://www.samaritans.org. Call 116123

Campaign against Living Miserably
https://www.thecalmzone.net

Anxiety UK
https://www.anxietyuk.org.uk

Mind
https://www.mind.org.uk

NHS
https://www.nhs.uk/oneyou/every-mind-ma ... gIWM_D_BwE


On Social Media
There are also support groups on Social Media including:
This is not a complete or exhaustive list nor is it necessarily an endorsement


Various Groups and Pages on Facebook

Dyspraxic Adults Only
https://www.facebook.com/groups/385200148985344/

Dyspraxia & Life
https://www.facebook.com/groups/2011392485819490/

Dyspraxia Awareness
https://www.facebook.com/groups/2213789638/

DyspraxiaUK
https://www.facebook.com/groups/DyspraxiaUK/


Local and topic based Groups UK

Dyspraxic Womens Network
https://www.facebook.com/groups/1092028857798213/

Dyspraxia Support Group Teeside
https://m.facebook.com/dyspraxiasupport ... ale2=en_GB

Dyspraxia Manchester Adult Support Group. https://www.facebook.com/groups/mdfasg/

Dyspraxia Lancashire County. https://www.facebook.com/groups/631280597644595/

Please comment below if you know of more I've missed

Pages and Blogs

Personal Training with Dyspraxia
https://www.facebook.com/dyspraxiainadulthood/

The Dyspraxia Foundation's FB page dedicated to adults
https://www.facebook.com/DyspraxiaFound ... Md4yh0Gy9A

Deviant Dyspraxic Blog
https://deviantdyspraxic.wordpress.com/ ... n6jsvSzOiI


You Tube

Krystal Bella. https://www.youtube.com/user/krystalxforever

The Two Dyspraxics. https://www.youtube.com/user/TheTwoDyspraxics

The Theatric Dyspraxic https://www.youtube.com/channel/UCDrGsW ... 7ZttBBcWQw

How to ADHD
while focussed on ADHD Jessica offers a wealth of useful and relatable info on a diverse range of topics
https://www.youtube.com/c/HowtoADHD

Also on Facebook: https://www.facebook.com/howtoadhd


Problems with the UK Department of Work and Pensions.(DWP)

Support at or relating to work

SCOPE (UK Disability Organisation)
https://www.scope.org.uk

Disability Union: https://disabilityunion.co.uk/

ACAS
https://www.acas.org.uk. Helpline Mon to Fri 0800 -1800 (6pm) 0300 123 1100

GMB Trade Union
https://www.gmb.org.uk/sites/default/fi ... -guide.pdf

Access to Work
https://www.gov.uk/access-to-work
or visit your local Jobcentre Plus

Genius Within
https://www.geniuswithin.co.uk/neurodiv ... 6b4f8-90b0

Exceptional Individuals Help Neurodverse Individuals and Employers
https://exceptionalindividuals.com

Dyspraxia Specific bits
https://exceptionalindividuals.com/neur ... dyspraxia/
They do have an indication test though it didn't think I was


Studying
http://www.diverse-learners.co.uk

Being/becoming a parent
http://www.dyspraxialifemagazine.co.uk/ ... nts-group/

http://www.dyspraxialifemagazine.co.uk/ ... dyspraxia/

https://www.thedyspraxicdoctor.com/post ... onemidwife


More general Mental Health support (UK)

The Samaritans
https://www.samaritans.org. Call 116123

Campaign against Living Miserably
https://www.thecalmzone.net

Anxiety UK
https://www.anxietyuk.org.uk

Mind
https://www.mind.org.uk

NHS
https://www.nhs.uk/oneyou/every-mind-ma ... gIWM_D_BwE



Beyond the UK
Ireland
Dyspraxia Ireland
www.dyspraxiaireland.com. Helpline 01 8747 085


Europe

France: https://www.dyspraxie.info/

Germany
https://www.dyspraxie-online.de/index.html (more for parents)

North America
DyspraxiaUSA. www.dyspraxiausa.org

Australia: https://dcdaustralia.org.au/

New Zealand: http://dyspraxia.org.nz/

Please help by suggesting



Books in Print/E Book Format

Caged in Chaos, Victoria Biggs

Dyspraxia: Dyspraxic Adults Surviving in a Non-Dyspraxic World, Janet Taylor and Mary Morris (Kindle only afaik)

Living with Dyspraxia: A Guide for Adults with Developmental Dyspraxia, Mary Colley

Unfiltered by Kelly Chester

Yellow Spaghetti by Michael Needham

Please help by suggesting more


Wider Neurodiversity /divergent Resources

Dyslexia Association
https://www.bdadyslexia.org.uk/

ADHD
https://www.adhdfoundation.org.uk/

How to ADHD
while focussed on ADHD Jessica offers a wealth of useful and relatable info on a diverse range of topics
https://www.youtube.com/c/HowtoADHD
Also on Facebook: https://www.facebook.com/howtoadhd


General Neurodiversity (credit to Fran - Thank You)

Not dyspraxia specific (focus tends to be on ASC) but these are some fantastic books by neurodiverse authors that I've read:

Odd Girl Out - Laura James (later life ASC diagnosis)
Letters to my Weird Sisters - by Joanna Limburg (letters to women from history the author feels were autistic)
Fingers in the Sparkle Jar - Chris Packham (this is really poetic prose about the natural world but covers ND sensory happenings too)
Drama Queen - Sara Gibbs (very funny - Jewish later life ASD diagnosis by a comedy writer)
Uncomfortable Labels - Laura Kate Dale (my personal favourite - looks at the cross over between ND and LGBTQIA+ via video game metaphors)

For younger readers:
Geek Girl - Holly Smale (teen girl fiction, but by a ND author)
A Different Sort of Normal - Abigal Balfe (what my child says everyone should read to understand ASC)
The Gifts of Autism - (aimed at younger children - child liked it but I was a bit Meh)

Finally, my absolute favourite book resource:
https://airtable.com/shrLEgiucjOU1ICfU/ ... ycLrDzxIJt
It's a list of books by/about different neurodiversities.


Apps / Tech solutions Credit Josh Hyland -Thank You


Microsoft To-Do, formerly Wanderlist

Web version: https://to-do.microsoft.com/tasks/
Android app: https://play.google.com/store/apps/deta ... soft.todos
Windows desktop app: https://www.microsoft.com/en-gb/p/micro ... verviewtab
iOS app: https://apps.apple.com/app/id1212616790?mt=8

I really rate this app - easy to use, easy to share if you have friends, family or others with whom you need to share task lists.

Tile

Web version: https://www.thetileapp.com/en-gb/
Android app: https://play.google.com/store/apps/deta ... leapp.tile
iOS app: https://apps.apple.com/app/id664939913

You need to invest in hardware for this but I have found that small investment has retrieved my phone and keys numerous times, very nicely. Tile is a tag that works via Bluetooth to locate your list item/s.

================
Updates:
6 May 22 Some expired links removed. A couple added under Europe
Last edited by Tom fod on Tue Mar 22, 2022 10:33 pm, edited 12 times in total.
Tom
Moderator/Administrator

With a foot full of bullets I tried to run faster but I just hobbled on to the next disaster.
(from Peter and the Test Tube Babies, Foot Full of Bullets)
michael
Getting settled in
Posts: 32
Joined: Fri Aug 09, 2019 12:26 am

Re: Help! Mental Health, Emotional and mental wellbeing

Post by michael »

I didn't know that anxiety was characteristic of dyspraxia till recently. Thanks Tom, very thoughtful of you to post this.
Tom fod
Administrator
Posts: 2737
Joined: Thu May 12, 2011 9:05 pm
Location: SW UK

Re: Help! Mental Health, Emotional and mental wellbeing

Post by Tom fod »

I would say anxiety is a standard reaction for many of us. If anyone has any tips and/or has managed to banish it and has a universal solution please share your secret and let us all know. A dark and warped sense of humour can only go so far! :-)
Tom
Moderator/Administrator

With a foot full of bullets I tried to run faster but I just hobbled on to the next disaster.
(from Peter and the Test Tube Babies, Foot Full of Bullets)
pixiewithdocs
Getting settled in
Posts: 30
Joined: Fri Oct 21, 2016 10:55 am

Re: Help! Mental Health, Emotional and mental wellbeing

Post by pixiewithdocs »

Hi Tom, thanks for posting this.


My counsellor says living with a hidden disability causes us lots of daily strain. So thanks for these links that can help support us all.


:ghug: :ghug: :ghug: :ghug: :ghug:
Aorta/tattoo the artery/with acute artistry
firemonkey
Power poster
Posts: 149
Joined: Sun Apr 05, 2015 5:02 am
Location: Wiltshire

Re: Help! Mental Health, Emotional and mental wellbeing

Post by firemonkey »

Anxiety is something that occurs with my Asperger's and schizoaffective disorder . Very probably being dyspraxic ,although not officially diagnosed , adds to that anxiety.
Tom fod
Administrator
Posts: 2737
Joined: Thu May 12, 2011 9:05 pm
Location: SW UK

Re: Help! Mental Health, Emotional and mental wellbeing

Post by Tom fod »

V much so
We're intelligent but it's a disconnect when we mske silly mistakes despite our best efforts.
Tom
Moderator/Administrator

With a foot full of bullets I tried to run faster but I just hobbled on to the next disaster.
(from Peter and the Test Tube Babies, Foot Full of Bullets)
RenegadeDyspraxic
Getting settled in
Posts: 17
Joined: Thu Sep 26, 2019 7:26 pm

Re: Help! Mental Health, Emotional and mental wellbeing

Post by RenegadeDyspraxic »

I am so glad to have come across this thread. For many years I have suffered from high levels of anxiety and never really known why. Even though I was diagnosed back at the age of 4 with Dyspraxia, I was never told about how it was connected to my high anxiety.
Discovering so was a huge relief for me but at the same time, felt like a massive slap in the face. For growing up and receiving treatment, I was told at one point that I am no longer Dyspraxic. Yet this isn't to be the case as it turns out the anxiety is also just another part of it.
So yes being Dyspraxic does lead to high anxiety.
Are you on Facebook? If so then why not sign up to the Dyspraxia Support Group, where you can chat with fellow Dyspraxics at https://www.facebook.com/groups/294976028092912/
Josh Hyland
New member - welcome them!
Posts: 3
Joined: Thu Sep 24, 2020 12:11 pm

Re: Help Resources List - Updated 22 Sep 2020

Post by Josh Hyland »

Hello,

Here are some additional resources:

Microsoft To-Do, formerly Wanderlist

Web version: https://to-do.microsoft.com/tasks/
Android app: https://play.google.com/store/apps/deta ... soft.todos
Windows desktop app: https://www.microsoft.com/en-gb/p/micro ... verviewtab
iOS app: https://apps.apple.com/app/id1212616790?mt=8

I really rate this app - easy to use, easy to share if you have friends, family or others with whom you need to share task lists.

Tile

Web version: https://www.thetileapp.com/en-gb/
Android app: https://play.google.com/store/apps/deta ... leapp.tile
iOS app: https://apps.apple.com/app/id664939913

You need to invest in hardware for this but I have found that small investment has retrieved my phone and keys numerous times, very nicely. Tile is a tag that works via Bluetooth to locate your list item/s.
FrankieSoup
Regular Poster
Posts: 61
Joined: Tue Feb 15, 2022 8:46 pm

Re: Help Resources List - Updated Mar 2021

Post by FrankieSoup »

Not dyspraxia specific (focus tends to be on ASC) but these are some fantastic books by neurodiverse authors that I've read:

Odd Girl Out - Laura James (later life ASC diagnosis)
Letters to my Weird Sisters - by Joanna Limburg (letters to women from history the author feels were autistic)
Fingers in the Sparkle Jar - Chris Packham (this is really poetic prose about the natural world but covers ND sensory happenings too)
Drama Queen - Sara Gibbs (very funny - Jewish later life ASD diagnosis by a comedy writer)
Uncomfortable Labels - Laura Kate Dale (my personal favourite - looks at the cross over between ND and LGBTQIA+ via video game metaphors)

For younger readers:
Geek Girl - Holly Smale (teen girl fiction, but by a ND author)
A Different Sort of Normal - Abigal Balfe (what my child says everyone should read to understand ASC)
The Gifts of Autism - (aimed at younger children - child liked it but I was a bit Meh)

Finally, my absolute favourite book resource:
https://airtable.com/shrLEgiucjOU1ICfU/ ... ycLrDzxIJt
It's a list of books by/about different neurodiversities.
Post Reply