How to help my sister?

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Glaedr
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How to help my sister?

Post by Glaedr »

Hello,

I don't have Dyspraxia myself, but my sister does and she's the reason I'm here. We're both currently looking for work, and of course it's generally very difficult to find a job at the moment, but she's finding it particularly difficult. She doesn't have much experience and the only contact she has ever had back from a job application has been negative. Today she has been getting very upset because she received a rejection letter from an advert because experience was needed in something which the advert did not state experience was needed in.

The job centre has been worse than useless, as has this ridiculous new 'work programme' thing. She was briefly signed up with a disability advisor who managed to get her a work trial locally (which didn't lead anywhere, despite her working very well for them for two weeks) and then another job in a local care home which she felt pressured into quitting because of a very nasty manager who was constantly ordering her to do hours of extra work for free. After this, the disability officer lost interest, was rather rude about it all and then never contacted her again. As the officer himself was in a wheelchair, we expected him to be a little more sympathetic.

In any case she has no confidence at all at the moment, and though I try to help her with applications, encouragement etc. I'm struggling to think of anything else that I can do to make it better for her. She is particularly worried because we both have additional pressure to find work now that the government has started to take people's DLA away for little or no reason. As she is able to walk, talk etc. it's likely that under the current system hers will be stopped, and it's also possible though she has a different, worse condition, that our mother's might also be stopped. This means that we really both have to find something as soon as possible because our mother can't possibly work.

Obviously we are both trying very hard to do this, but neither of us has a degree and it seems that people require a degree now for even the smallest of jobs. If an advert states "a degree" without stating a specific subject, the degree itself is probably not needed to actually do the job, and frankly if I'd just sunk into a great black pit of debt to spend four + years studying and someone told me afterwards that I was most suited to general administration work for minimum wage, I'd be insulted. I'd have loved to go to university myself, and I'm sure my sister would have too, but the money just didn't work out and fees now are higher than ever.

Right now we're both kind of going around in circles and jumping through ridiculous government hoops with next to no 'official' support. Honestly at this point if I came face to face with either Cameron or Clegg, I think I'd punch them both as hard as I possibly could and I'm not normally a violent person. It's hard enough for me to deal with but I'm getting very worried about my sister's general health and stress levels. She doesn't seem to be handling it very well at all. I feel like I should be doing something to help, but I don't know what. Is anybody able to make any suggestions, please? :( Thankyou.
ALADDIN
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Re: How to help my sister?

Post by ALADDIN »

Hi Glaedr ,

There are many issues. I have symapthy for your sister's pedicament. Politicians are no good, especially Blair, Brown and Cameron but Clegg is not an angel. The job centre is useless on a good day, it is not friendly, not practical. Disability Employment Advisors are generally evasive, rude, ignorant, arrogant, having little or knowledge of dyspraxia, dyslexia, aspergers/autism/ASD. Dyspraxia is the poorest supported condition.
Society does not understand hidden disabilities especially dyspraxia.

The economy is very bad now, I predict no recovery for al least 2.5 years - 4 years. Before the 2008 recession, there was a short sharp recession in 2001-2002, but the economy has not recovered to its peak, there was only public sector jobs. IT and manufacturing jobs have been shipped abroad. The job market is very competitive, especially for neuro-diverse people.

The N.H.S will generally not diagnose adult dyspraxia, the chance of support are minimal. The same is true for aspergers/autism/ASD.

DANDA, Dyspraxia(USA) and Key4Learning have been fantastic, but they are small geographically concentrated charities.

The Dyspraxia Foundation (UK) and the National Autistic Society , especially the Dyspraxia Foundation (UK) have been parent controlled, child centred and not focussed on adult issues. Dyspraxia is much more than being clumsy.

DLA is hard to get, I think there should be more money to get DLA.

Your sister could try volunteering.

Degree might not be worth the debt, graduate jobs are competitive, graduates are over-qualified for many non-graduate jobs, dyspraxia can br a hinderance.

The job centre will not generally help graduates, how can a graduate be placed in a low skilled job by the job centre when their debts may be huge and he/she may be over-qualified.


I was told that I had dyspraxia, 10 years ago, I thought dyspraxia was just being clumsy (I blame the Dyspraxia Foundation for not promting dyspraxia enough, not explaining the condition, related conditions, concentrating on children and their parents).

I was told that I might have aspergers, iN 2004, I was diagnosed in a non-standard way with an autistic spectrum disorder (aspergers traits) not aspergers syndrome. The National Autistic Society seem to provide no support or treat people like experimental data, either you do or not have asperger syndrome.

In 2008, I realised my problems were dyspraxic, I received a diagnosis of dyspraxia, privately, 60 miles away.

I have a diagnosis of dyspraxia in May.

People need to be exact about all these conditions.

I have a degree, postgraduate qualification, prior to knowledge of dyspraxia. I can work, I have had jobs but due to the bad economy, changing jobs market, tonnes of graduates I am having problems getting a stable permanent job.

I have a professional qualification, lots of skills, experience.

I am being discriminated because I did not grow up with dyspraxia. I applied for over 60 jobs, 1 interview, this year, the economy worse than last year (I had several first round selections).

I passed my driving test after several attempts, having not understood dyspraxia.

Lots of people with dyspraxia are underemployed or unemployed, especially those people with severe speech dyspraxia.
Last edited by ALADDIN on Wed Aug 29, 2012 5:19 pm, edited 1 time in total.
AlleyCat
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Re: How to help my sister?

Post by AlleyCat »

Hi Glaedr. It's great that you care about your sister so much and want to help her. I wish I had a sister like that, but my own (particularly successful) sister prefers to take out her frustrations on me, rather than trying to find out more about how having dyspraxia has made it especially difficult to find or keep suitable employment. You should post on Boycott Workfare's twitter page (or facebook page) about what's happened to her on Work Programme placements. The kinds of things which have happened to her (eg being pushed off placement by a nasty manager in a care home) are exactly the kinds of things which I worry would happen to me if I was ordered to do an unpaid work placement in exchange for my benefits. I'm strongly opposed to the idea of Workfare anyway but, as I'm currently signing on, I know that I could one day be ordered to do an unpaid placement. I'd be no good doing a menial kind of placement, such as stacking shelves, as I'd be quite slow, plus I have problems with attention so would switch off from doing the task after not very long. I also worry that I could become the target of bullying by an intolerant manager, as this has happened when I've had paid jobs. What's particularly disgraceful is that your sister has actually made the Job Centre's disability advisor aware of her dyspraxia, but that he seems to be ignorant of what having the condition means and how it could affect her in the workplace. Perhaps she could give him a copy of the Dyspraxia Foundation's excellent guide for employers, so he is better informed about the condition:

http://www.dyspraxiafoundation.org.uk/d ... ia_1.0.pdf

Aladdin's suggestion for her to do some voluntary work may or may not be helpful in assisting your sister in getting a job. About ten years ago I did quite a bit of voluntary work because I couldn't get a paid job, but I'm not sure how useful it was. Now I'm once again out of work, some people have suggested that I do voluntary, but I'm reluctant to do so because not having a paid job does get disheartening after a while and I don't want to spend my whole life working as a volunteer because I have dyspraxia.
Tim G
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Re: How to help my sister?

Post by Tim G »

I wont get into the politics of the situation.
Allthough volentering isent paid it does give you somthing to do and most of all experance which can be helpfull when applying for jobs, also if the volentery work dosent work out then you have no oblagation to stay there - you can leave as and when you like also it wont affect your benerfits - it may even help as it shows your doing somthing.

I can compleatly understand about how unaware people are about dyspraxicia and ND issues as such - all of us on hear can relate to this.

I would advise agensed going to unie as firstly its the cost, also its verry demarnding even with support so it may just end up being a worse situation and also there is no point in going if you dont really know what you want to study - just beceuse others have a degree dosent mean you should feel presherured into it as well.
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Catwoman42
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Re: How to help my sister?

Post by Catwoman42 »

I agree that volunteering is a good idea; for example, volunteering in a charity shop would give your sister retail experience. It's also a chance to meet new people, the more people you know the more opportunities you will have. It will also give your sister's week some focus
ALADDIN
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Re: How to help my sister?

Post by ALADDIN »

I saw my Disability Employment Advisor today. It was a complete waste of time. She appeared to have no ideas regarding dyspraxia. The one positive is that the advisor was not nasty.

God help people who cannot work, make applications and attend interviews.

The lack of awareness of conditions including dyspraxia, dyslexia, aspergers/ASD/autism means the barriers are huge.
Avarice
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Re: How to help my sister?

Post by Avarice »

ALADDIN wrote:Disability Employment Advisors are generally evasive, rude, ignorant, arrogant, having little or knowledge of dyspraxia, dyslexia, aspergers/autism/ASD. Dyspraxia is the poorest supported condition.
Society does not understand hidden disabilities especially dyspraxia.
That they are mostly a joke or the worst wrong people in the wrong job is not altogether suprising when they only have "96 hours of induction and foundation learning " and " 205 hours of learning specific to the personal adviser" and "59 hours of hours of specialist learning to support customers with severe health conditions."

http://www.disabilityalliance.org/deatraining.htm

Add all that up and thats 360 hours of training or 15 days. Hey presto. I am now a qualified Disability Employment Advisor! I can now fully grasp all the subtleties and all the nuances of the entire spectrum of disability from blindness to dyspraxia! If a Doctor had just had 15 days of training to qualify from degree to practicing medicine instead of 3-4 years study and post graduate training would you want them anywhere near you? Would you think they were competent enough to really know anything about anything? They might grate you a bit as a person but that could be put aside if you thought this was a person who really was as qualified as they can be to truly understand and actually help an individual.

Where disabilities( especially where more complicated and subtle ones are concerned)the idea that 15 days of "training" constitutes real knowledge, insight and ability to make someone's life in the economic world meaningful (assuming the attitude they have isn't inherently shitty and officious like many an old bat) is risible.

If that position is to be taken seriously then there has to be a massive upgrading of the qualifications, skills and experiences required and more screening and vetting of who is considered right for that job.

It would thus also have to pay significantly more than the average for job centre staff.

Not everyone is considered suitable for being a social worker. It should be the same for a Disability Employment Advisor.
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