help.

A place to talk about your experience of living with Dyspraxia

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molsonsnobunny
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Posts: 14
Joined: Sun Jan 29, 2012 10:52 am

help.

Post by molsonsnobunny »

I went to the doctors today to try and get diagnosed. I couldnt sleep most of the night, I felt worried that this might be a repeat on when I was younger, where they couldn't understand why things were the way the are. I seem to feel like getting a diagnosis would put my mind at ease, so I would feel a little less lost.

Anyways, the doctor ended up making me feel more lost and kinda depressed. I was excatly where was I was agian so many years ago. He kept asking if i was depressed, and why I kept crying. For most of the visit he kept saying oh it's just because I have small hands. I was actually beggining on thinking that he thought I was pretty crazy, and was trying to make up problems, this is where my mind goes. He then decided that he should do a brain scan and make sure theres not a problem with my nerves. I don't know if theres been anything new but in my expirence when I was little brain scans showed nothing was wrong.Then he said "we have to do extensive tests just to find a simple problem, that your hands are weak." This comment made me feel like I was being a burden on the entire medical community. He finally did a few tests with my hands and said that I have loose ligaments. He said that my fingers arent supposed to be able to bend like that, and asked if i have ever been in a car accident. No.
In the end he told me they would set up a scan appointment and call me. part of doubted they'd even call.
He gave me a couple excerises to do, like the squishy ball and 2 pound weights for my hands. then told me to take up an instrument- i tried to take up the piano, but I couldn't, and trying to figure out placement on things like guitars frustrated me. Then he told me, and I quote, to get better self esteem and to go to the gym and loose weight and that nothing is wrong with me.

I don't even know what to do... my mind is trying to revert back to how i've been living for the past so many years and tell myself that theres nothing wrong, i'm just really stupid and lazy. I want to give up already, and i'm really sad. I feel like because I am an adult that to the doctors this condition doesn't exsist. I need to find a doctor whose more willing to help. Maybe if i try tofind my familys doctor when I was a kid? Im not sure if he's practicing anymore, or who he even is. Once my mom passed away, we never went there again.
i don't know im just so frustrated.. i'm in canada and im finding it exteremly hard to find any information on any doctors that have any idea about this problems.
anyone have any advice? sorry if this is in the wrong section
Tim G
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Location: Basingstoke - UK

Re: help.

Post by Tim G »

I appreacate that the docter is trying to help and that is good but he is really going about it in the wrong direction of trying to find a phisicial issue which there issent one its mental.
What your describing really is commen for people with dyspraxicia but the docter hasent heard of it so I would suggest going back there and having some infomation on dyspraxicia that he could look at. - Check out the dyspraxicia foundation for more infomation and contact them for advice as they are quite used to dealing with this.

If the docter dosent want to know about dyspraxicia then find another docter and also look into getting a assisment as that will really help prove why you are the way you are.

There is somone in Canandia who could help - I found the link from the dyspraxicia foundation. http://www.dyspraxiafoundation.org.uk/help/links.php (scroll down to oversees links)
The real Mr Potato Head
BinaryBovine
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Joined: Wed Feb 29, 2012 9:39 am

Re: help.

Post by BinaryBovine »

Wow molson I really feel for you, I went through the same feelings myself when I was younger. I really hope you find a more understanding doctor- because this one really doesn't seem to be helping you at all :(

Dyspraxia is called the 'hidden handicap' for a reason, and this doctor of yours doesn't seem to beleive in what he can't see. There are so many times myself and people like me have been called stupid and lazy by people who don't understand, but its usually just not true. They only say it because they dont understand what its like.
I don't want to give a diagnosis because I'm not a doctor myself, but it sounds to me you may be dyspraxic, and there are tests you can take online to gauge the possibility that you are. However the best way you can find out is probably to see a different doctor or even a psychologist. Your local GP isn't the only person who should know about dyspraxia, I saw a GP, Occupational Therapist, Physical therapist and psychologist to confirm and help me manage my dyspraxia.
Its a condition that spans many medical plains, which means there are many other avenues you can take this and people you can go to for help.

By the way, lax ligaments are a classic SYMPTOM of dyspraxia! I have lax ligaments and was told on diagnosis of my condition that its just another part of being dyspraxic. My hands are very weak too, I can bend my thumb back to my wrist without any pain, besides other things. It hurts to write for long periods of time, my writing was messy when I was younger and when I tried to play violin, I struggled because its hard to bend your fingers that way when you're double jointed.
In fact the more I think about this doctor of yours, the angrier I get. He should be helping you, not making you more upset! It sounds like he really hasn't been listening to you properly in dismissing your problems like this. If he can't get to the bottom of this he should refer you to a specialist, if he wont, then you have every right to seek another medical opinion.
Socially awkward penguin
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