I'm currently awaiting blood test results to rule out other things then I'll be assessed for hypermobility syndrome. My dr worked out my beighton score as 7/9 and I meet both major criteria in the brighton criteria. Wondered if there were any others on here with HMS/EDS?
Some recent research shows that virtually everyone with Dyspraxia also has Benign Joint Hypermobility Syndrome (BJHS) (so we should all be "double jointed" at least ; )
Saw the specialist and they are debating wether it is HMS or EDSIII although the leading experts pretty much agree it is the same thing. They did my beighton score again and I scored as 9/9
I am very flexible in the sense that no one my own age at least (i'm very small and not very strong for my age) can put me in any kind of hold even someone who works in a psychiatric home and is trained to do that kind of thing (to restrain people) could only do 1 type of lock me and would of be unlikely to do that if I hadn't let him put me in the lock in the 1st place this has resulted in many people who know me in college to give me the nickname "the worm"
I thought that this might be a symptom of hypermobility syndrome that I read about on a dyspraxic website but unlike other people are really flexible I can't twist my arm 180 degrees or anything so I am not sure
HI I HAVE HAD DYSPRAXIA SINCE I WAS BORN AND HAVE NOW RECENTLY BEEN DIAGNOSED WITH HYPERMOBILITY AS WELL AFTER EXPERIENCING FREQUENT JOINT PAIN IN BOTH MY HANDS AND LEGS, IM NOT REALLY SURE WHAT ITS ALL ABOUT SO THOUGHT I WOULD HAVE A LOOK ONLINE AND FOUND THIS FORUM.
Hi!
I am familiar with these symptoms.
This is the connective tissue disease.
It is called “Joints Hypermobility”.
The joints sore, they become crunchy, soft tissue may ache…
The ligaments are stretched.
Cartilage tissue wears out fast.
I published treatment regimens.
There is information regarding alternative medicine preparations as well.
I’ll tell what can help you!
This is my story of recovery -
Last edited by Tom fod on Tue Feb 16, 2016 6:05 pm, edited 3 times in total.
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i have clicks in my joints, my knees and feet hurt after walking for a moderate time. i once suffered from such pain in my knees that i when't to the doctor and said my knee caps were not being held on as strongly as they should and i got physio which helped, i have never been diagnosed with a specific condition that causes this but after reading online these symptoms sound a bit like HS, does anyone know if this is the case?
Hi I have been diagnosed with hypermobility however I have also been reading that dyspraxics have loose ligaments guess it's the same thing at the end of the day. My joints are constantly painful and slipping out of place. I was told at 35 both knees need replacing and the only solution to stop my elbows and ankles dislocating is to -sorry can't think of the word-they break them and set them in one locked position. For me the solution has been braces, exercising so the muscles take the place of the ligaments and using backpack rather than bags in my hands. My daughter who is also dyspraxic has constantly dislocating knee she also has to spend lots of time doing physio to strengthen muscles to try and prevent it as her ligament is so loose it can't hold her knee together.
HS does seem to be one co-occurring condition for some but not sure of the prevalence and no two people are the same!
Tom
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