Call for help

A place to talk about your experience of living with Dyspraxia

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PatriciaAdam
New member - welcome them!
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Joined: Mon Aug 28, 2006 6:34 am

Call for help

Post by PatriciaAdam »

My husband and I are just now putting some pieces together about Adam, our 22 year old son. He's always been "different"--clumsy, socially awkward, very fearful of new people, trouble using forks and spoons,terrible handwriting despite my long hours of practice with him..well, the list goes on and on. Since you all clearly have adult dyspraxia, can you help me know what else to be looking for? He's about to go through testing for a firm diagnosis, but this also seems to be stemming from Asperger Syndrome. Any comments or thoughts? Any insight would be most helpful.
Daniel
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Post by Daniel »

Welcome to the forum.

What you describe does sound like dyspraxia (I can personally attest to experiencing everything you mentioned), but dyspraxia itself can contain elements of AS and other disorders. There's lots of other good advice on the forum if you browse some of the other threads here. Generally speaking you can find information about dyspraxia symptoms online. As regards diagnosis the ease of this tends to depend on whether your son is in full time education, or if you'd consider going privately or not, as the mainstream NHS proves a mixed bag for many in getting diagnosed to say the least.

If you've any more specific questions feel free to ask.

Daniel
josiejo31
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Post by josiejo31 »

lol, dyspraxia seems like such a vague 'disability' sometimes, i mean some of us can walk in a straight line and some cant, some have no problems with things like laces wheras these are the bane of some people's lives!!! there doesnt seem to be any thing that we all have in common that way, is that just me?
robyn

Post by robyn »

i think that everyones experiences of dyspraxia can be very very different. add in everyones different co morbids, and general life experience and theres no way we can be classified. I cant stand generalisation, just because we have dyspraxia doesnt mean anyone can speak for another so I hate the reference 'us'. There are many similaraities though and it is such a relief to find others who are in a position to empathisis and it is useful to share coping methods.
towildhoney
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Post by towildhoney »

I have to agree with others my diagnosis was purely dyspraxia but in hindsight of my childhood and my personal insight I can recognise deffinite autistic traits. I think it all about understanding your own self and developing a routine to cope with it.
Shadwell
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Post by Shadwell »

I know I am late with this reply as it was months ago, but I was unlucky when I was in school, as they didn't know anything about dyspraxia, and so no-one could actually put a name to it, or even say anything about it.

my parent's taken me everywhere, speach therapy, as at the age of 5 I still couldn't say more that about 3 words from what my mother remembers.

the old gp wouldn't tell us anything apart from it is all in our imagination, even though at the age of 28 I finally found out how to view my medical records, and I only had an hour or so to read them!

the receptionist was back and fore like a yo-yo every 5 minutes, and asking if everything was alright! well as you can imagine, not being able to read properly, and then the added interuption! then didn't get to read that much

but what I did see was what looked to be a medical report of when I was about 10 years old, and it did say about having dyspraxic tendancies, well me, and my family were up in feud over it, not because of all the time spent running around, but not being told anything, and made us feel like we were banging our heads against a brick wall all the time!! as no-one would tell us anything.

now I am 30, I have come to terms, and relieved that they have labelled it as something, but it was only through watching tv that I started asking questions, otherwise we probably still wouldn't know anything.

well I knew what I was looking for was the time before I switched to this present surgury, as I knew that this gp wasn't hiding anything from us, all he asked was am I claiming dla? and why not? whenever myself or my mother seen him.

so he was honnest in that sense, as it affirmed there was actually something wrong with me, but the penny didn't drop!

I have never hidden anything from my parents, they have always known as much as I have, and always done stuff, like that night after watching the programme, I went over to my parents place, and then my mother grabbed the bit of paper that she had written the name of the condition on, and we both put 1+1 together!

as it was the same condition that my mother had seen on tv a few years before, but my grandparent's persauded her, not to chase up about it from the foundation, even though I said yes to finding out about it, at the time.

well then I went onto the internet, and it was telling me all the stuff, and I was saying (yes/or with some difficulty) to most of the conditions.

about the only statement I could say no to was, that most people with dyspraxia never learn to drive, but that was because I was determined, even to the point of constantly nagging my mother or father to take me for a driving lesson nearly every day. (well I did warn them that I was going to be nothing like my brother when I gained my provisional license!!)

I did do a saturday job, for a few months, and the blokes used to get me to shunt the lorries around the yard to the garage, so I knew what it was like to drive before hand, and I did enjoy it.

the one bloke wasn't surprised when I told him I passed my car test first time, as I met him in a petrol station a few months after passing, but there again when he had me driving, then he always said I would pass my driving test first time! reguardless of whatever condition I had.

but I think the symtoms are getting stronger now I am 30, as for the past 10 years I have been less balanced when going up, and down the stairs, by having to hold the banister with one hand, and the wall with the other, my co-ordination is getting slightly worse, and my memory is nowhere near as good as it once was,

and for about the last 5 years I haven't been able to have background noise while reading,

and looking at the other chat messages then it seems like it isn't just me
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