Getting diagnosed

[agsiul]

http://en.wikipedia.org/wiki/Raynaud%27s_phenomenon

There are some good pictures here of what it looks like. Thank God my hands haven't looked like that in years. All that sounds really familiar particular working with the computer. They say 20 degrees in the house is warm enough but it definately is not. I need to have it up around 25 if I am working like that because even now my hands will hurt from the cold....and would you believe that I forgot to take my meds 2 days this week and because it has ben so cold I was starting to get the pre-migraine pains in my head. I hope to God that I've managed to get rid of it. Can't afford to be sick right now.

[thelaticsfan]

It really annoys me, I found out About dyspraxia when googling dyslexia and clicking on the wrong link, I'm 100% sure I'm dyspraxic by reading the symptoms on all different websites, but when I went for a diagnosis the doctor referred me to a specialist, my doctor was honest and said there was a long waiting list but he expected around 2 months.

Yet here I am 21 months later and not even a phone call or letter.

I know a diagnosis won't give me some miracle cure or anything but it's a diagnosis, it's confirmation, if ever I said I had dyspraxia people always want to know when I was diagnosed, if I say I'm still waiting to be then they think I'm making it up

[jackwabbit]

It would appear that trying to get a diagnosis as an adult is almost imposable, my son was referred to Guys hospital as a child, we wasn’t told anything at the time & it was only after getting all his medical reports for an ESA tribunal that we found the one from Guys. Apparently he was referred to check if he had Coffin Lowry Syndrome, the reply was that he didn’t think Coffin Lowry Syndrome was not the correct label for this type of Dyspraxia. This doesn’t really say whether he has Dyspraxia or not but after researching it on the web it sound so much like him. As far as the ESA dept are concerned because he isn’t receiving treatment for this at the moment its not relevant. We have tried to get our GP to refer him to someone to confirm one way or the other & he says he hasn’t a clue where to sent him. He is under a neurologist at the moment for what may me severe migraines with aura but even this consultant doesn’t know where to refer him for a Dyspraxia assessment.

[ishi]

Hi everyone,

I've been reading this post and wondered if anyone can confirm the process for diagnosis/assessment.

I have a brother who is dyspraxic and when I had an Ed.Psych assessment for dyslexia she said I was probably dispraxic too. Although she wouldn't say that for sure because she said she wasn't abled to do so. She mentioned how dyspraxia is a 'medical' condition and so not one that could be assessed by someone from an educational background.

So, who do I see for a private assessment? Presumably I would not get one from the NHS.