Heylo :)

Introduce yourself here, a bit about you and your interests.

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Loki
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Posts: 31
Joined: Thu Apr 14, 2011 1:54 pm
Location: Birmingham

Heylo :)

Post by Loki »

New Person :)

Obviously otherwise I wouldn’t exactly be typing here :). Generally new to everything including Dyspracia, my parents were told I might have Dyspraxia when I was a kid but we moved around so much and because I always got good grades in maths (oddly enough - my curse through most of my school life) it always got brushed under the sofa, I never really thought much on it.

Have however suffered from extremely bad chronic migraines since I was about 15, I’m 23 now, and baring spotting a lesion on an MRI scan my doctors might as well sit there and shrug… very recently been pushed in the direction of Irlens lenses… was a little hinky on the idea but hey, 8 years of blinding head pain? Who am I to not try it!

Going through this, speaking to various people, Dyslexia popped up, and Dyspraxia… not long after I’m being told a load of things that I thought were just me might be from this. Things which people have over the years gotten exasperated at me for leaving me feeling for want of a better term rather useless as I got used to being told that I was wrong. I’m extremely sensitive to touch, cold, pain, light – always have been and when I’m anxious when expected to hug some one I usually get the disapproving looks or in a room were I’m freezing I’m told that I am not freezing… driver me around the bend.

I always need to know more, on everything so since there was a chance that I might have this I have been looking things up like mad, but trying to talk to friends and such I kind of the a ‘meh’ attitude from it which is what sent me in hunt of other people which brought me here…

And this was supposed to be a very quick intro “Hi!”… Kind of failed at that really…

Anyhow – I’m 23, Living in the land of Brum (Birmingham) and I’m a Personal Injury Negotiator in Motor Insurance (Sounds dull… and I’m constantly asked why I’m doing this job as people say I should go and do something … more… I don’t know much on that but I don’t get -bored- in this job, I don’t know if this is something possible linked with Dyspraxia but I tend to get bored quickly, I’ve got several A-Levels, double digits worth because I’d do one, get more and want to do another and learn something new… oddly this job throws new stuff at me all the time!)

Will leave you be as I have rambled far more than I planned!
Beware my friends, as you pass by
As you are now so once was I
As I'm now so you must be
Prepare my friends to follow me
/Mary Jane - Megadeth/
Millie
Getting settled in
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Joined: Wed Mar 16, 2011 9:53 am

Re: Heylo :)

Post by Millie »

A very warm welcome! Many of your experiences sound very similar to my own! It;s a fairly new idea to me also.
I hope you find stuff that helps you from this site. :-)
agsiul
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Joined: Wed Mar 10, 2010 11:39 pm

Re: Heylo :)

Post by agsiul »

I get migraines and also over sensitive to textures, light, noise and the worst one here is cold since I live in Ireland. I realised how bad it was when I returned to Ireland after living in Australia and my migraines came back....turns out one of my triggers is cold so it would be worth looking into if I were you. I'm on Adalata LA60 which is a slow release tablet which I take once a day. I know what you're talking about....I don't know how many times I've been told that I couldn't possibly be cold. Really pisses me off. My GP was brilliant though. Knew exactly what I was talking about when I went in, tried out different things first before medication and then went on the meds ....would say that i've never looked back but ](*,) a couple of years ago forgot to get my script renewed. The coldest weather of the year hit just as I had run out of meds....never make that mistake again. I was in agony. GP told me to be careful in the future because they were working as a preventative for the migraines as well which of course I'd realise by then. #-o by the way it is called Raynauds the over reaction to the cold. There is one version which you have and then there is another one which you can get from working with things like drills.
Loki
Getting settled in
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Joined: Thu Apr 14, 2011 1:54 pm
Location: Birmingham

Re: Heylo :)

Post by Loki »

Thankee for the welcomes :)

I'd never actually though of bringing up my sensitivity to the cold to my doctor before, I get migraines realy easily if I'm out in the cold for too long, especially if I don't wear a hat but again I just thought that was me being silly and not keeping myself warm. The Migraines have always kind of won out when I go to the doctors, even when I fractured my sacrum they won when I went to the docs!
Beware my friends, as you pass by
As you are now so once was I
As I'm now so you must be
Prepare my friends to follow me
/Mary Jane - Megadeth/
agsiul
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Posts: 489
Joined: Wed Mar 10, 2010 11:39 pm

Re: Heylo :)

Post by agsiul »

Definately look into it. I used to get thing thing where my face would cramp...no idea what it looked like but it used to freak me out. It was like my muscles under my chin would fall out. I'd have to keep masaging it back into place. It had to have done with the cold & when I'd yawn because it hasn't happened since.
Loki
Getting settled in
Posts: 31
Joined: Thu Apr 14, 2011 1:54 pm
Location: Birmingham

Re: Heylo :)

Post by Loki »

Oh kind of like if you yawn its can really hurt and cramp, like a weird horrid burning pain in the muscles?? I get that now and then and it hurts like hell, freaks me out every time to and I usually end up doubled over until it goes away, I keep saying I'll mention it to my doc but I don't think about it when I'm with the doc, only when it happens and after its gone away it aches for a while but then nothing so I never remember..
Beware my friends, as you pass by
As you are now so once was I
As I'm now so you must be
Prepare my friends to follow me
/Mary Jane - Megadeth/
agsiul
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Posts: 489
Joined: Wed Mar 10, 2010 11:39 pm

Re: Heylo :)

Post by agsiul »

Loki wrote: I keep saying I'll mention it to my doc but I don't think about it when I'm with the doc, only when it happens and after its gone away it aches for a while but then nothing so I never remember..
Me too. I did mention it eventually. He didn't know really what was causing it and thought that it was just a cramp like all the others so told me to keep doing what I was doing and keep masaging the muscle until it went back to normal. It hasn't happened in ages so it must be connected to the cold. STill get cramps in my feet & legs when I swim though.
Loki
Getting settled in
Posts: 31
Joined: Thu Apr 14, 2011 1:54 pm
Location: Birmingham

Re: Heylo :)

Post by Loki »

Cold is likely, I absolutely hate the cold, always have >.<

Dreading my never conversation with my doc as all of the recent things with Dyspraxia etc have been in private practice.... and I know well when happens when you got to an NHS doctor saying "I have X" Oh thats going to be interesting to say the least...
Beware my friends, as you pass by
As you are now so once was I
As I'm now so you must be
Prepare my friends to follow me
/Mary Jane - Megadeth/
agsiul
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Posts: 489
Joined: Wed Mar 10, 2010 11:39 pm

Re: Heylo :)

Post by agsiul »

Don't mention the dyspraxia....I got the diagnosis for the raynauds before the dyspraxia by about 10 years and when I mentioned to different medical people that there could be a connection they said that they might and then again there might not be....go with it as a completely different complaint....the only reason I did go was I was in Australia and when I got back I realised how bad it was because suddenly I was back to pain and suffering....my hands and legs just shut down. the connection with the migraines wasn't even made until I cocked up my meds...just tell the GP what symptoms you have that relate to the cold, how it affects you,etc. That wouild be my advice..keep it nice and simple...no confusion. There's a good example on this website of what it looks like.

This is a link to the British association: http://www.raynauds.org.uk/raynauds/raynauds
http://www.irishraynauds.com/index.php/raynauds/

hOpe that helps
thelaticsfan
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Location: Oldham

Re: Heylo :)

Post by thelaticsfan »

Hi Loki,
I get the colds aswell! although dont know how to stop them!
thelaticsfan
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Location: Oldham

Re: Heylo :)

Post by thelaticsfan »

also what you explained is pretty much the same here, my friends always telling me im wrong, often cant understand why I cant do what they can.

its very nerve racking meeting new people because im worried that i might come off as a bit of a weirdo to them! I start talking to them but keep repeating myself because I dont think I got my point across properly
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