A newbie and a few questions

[Jemma]

Hi, my name is Jemma and I am beginning to think I might have dyspraxia, so am looking into it as best I can. This weekend my husband asked me to do that test where you flip your hands from one side to the other as fast as possible, I didn’t have a clue why but did it anyway and managed to nearly wack him as well as me. He suggested I might have dyspraxia after seeing it on tv recently as I am known to be rather clumsy. I thought I’d have a look today just to see if he might be on the right lines, I mean I am very clumsy lol. Then I found the list on the dysprixa foundation website and it made for some rather interesting reading. There were all of one or two lines that didn’t sum me up perfectly and that was partially because I didn’t understand those too. Now I’ll admit I do tend to make things fit me, and have done in the past, as I just want to understand me, so I asked my more level headed husband to have a look (he normally dismisses these things). Within 5 minutes he’d said I sounded like a text book case. It sums up a lot, why I stumble over words, why I have no concept of where bits of me are at any one time, why I sounds like an elephant (much to his annoyance) any time I go up the stairs, why my brain is about as organised as my desk and why I really struggled with so much whilst growing up physicallt. And that’s only a few of them, I went through the whole list and could think of examples for all but 2, some were lines I have heard used to describe me by friends, family and school teachers. It was kind of a revelation.

My main reason for joining this forum is to try and work out what to do next. Is there any advantage to speaking to my doctor, they have been nice in the past and tend to refer me when I ask, but can they do anything. To me this has been going on for so long it’s pretty much who I am and I don’t really see how it can be fixed, though I suppose the walking lessons I had as a kid did really help me (I sued to walk toe first).

The other question is does anyone have any experience of dyspraxia being linked to random nerve pain, I suspect it’s something else but I’ve been suffering for a couple of years now with sporadic nervey type pains in my arms, legs, chest and neck as well as numbness and tingling. I’m clear on an MRI and nerve conduction study and it’s not bad now so I’m leaving it rather than go for some nasty tests but if it was linked I would feel like it made more sense lol.

Thanks in advance

[agsiul]

Hi there. Do you suffer with the cold. Is that why your hands and get numb?

[Jemma]

I do suffer a bit with the cold, but i am pretty cure this is unrelated, when i sleep in certain positions my hands just go numb, not cold as such jsut kind of pins and needles ish then nothing, untill i move them and try and get them back to life. It's weird and the docotrs don't know why, they've ruled out a few things, and to rule the rest out would involve some sort of spinal test which is apparently pretty awful.

[agsiul]

It could be connected. I have raynauds. I'm also photosensitive, sensitive to touch and textures & certain materials. I'm on medication and it helps open up the blood vessles because they close down with the pain. If I weren;t on it my hands & legs would go numb, blue and red. I'd get migraines from the cold and I'd be in major pain with the cold. I didn't realise how bad it was until I returned from Australia. Then it was so obvious I had to do something about it. My GP was brilliant, Knew exactly all about it and tried out different things first before he put me on meds and then it was a gradual thing to find out the level that I'd need. The severity of it varies from person to person. It's a sort of over reaction to the cold. I don't know it it would explain the other pain but it might mean that you are so stiff from trying to stay warm.

[luzalu]

Hi jemma!

What you were saying about the random nerve pain, i get that too. I've had loads of different tests done including the spinal ones which were very nasty and everything has come back perfectly clear the only thing they can posibly think of that it is related to the dyspraxia as dyspraxia is caused by a certain part of the brain being underdeveloped but its not brain damage so there will be nothing to be seen on brain scans as has been proved with me. So the brain looks perfectly normal but its just underdeveloped in certain places causing the problems associated with dyspraxia.
Hope this helps

Lucy xx