Dysphraxia new person

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Janie
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Dysphraxia new person

Post by Janie » Sun Jun 24, 2018 2:10 am

Hi, I am from B.C. Canada. I had 2 spinal surgeries 2 years ago. First being a. .d.f. Surgery and second lower back, disc had deteriorated to small pieces.was removed. Since then, I have lost my rhythm, unable to write even my name and have developed a slurred speech. All quite dramatic for meas I made my living in t.v. Broadcasting and as an artist and musician! I am left handed and my left side is useless. I am on an 18 month waiting list to see a neurologist! I am not able to find a support group in B.C. And do not see anyone else struggling with these symptoms out there. My G.P.told me to get use to it! I do not even have a diagnosis but from reading feel it must be dysphraxia. The medical professionals I have seen do not believe in dysphraxia! Is this the normal reaction to dysphraxia in Canada or amI in the wrong province?

Tom fod
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Location: SW UK

Re: Dysphraxia new person

Post by Tom fod » Sun Jun 24, 2018 7:19 am

Hi and welcome.

Dyspraxia aka DCD is first and foremost considered to be a developmental condition i.e you grow up with the condition. However, there is some level of acceptance that it can occur as a result of injury or other physiological event. I suspect this is possibly why they are dismissing Dyspraxia in your case and I can only begin to imagine what you are going through with this.

We have had/do have members from BC /Ca.and recognition and support is most definitely less than there is here in the UK.
Tom
Moderator/Administrator

With a foot full of bullets I tried to run faster but I just hobbled on to the next disaster.
(from Peter and the Test Tube Babies, Foot Full of Bullets)

Janie
New member - welcome them!
Posts: 8
Joined: Sun Jun 24, 2018 1:47 am

Re: Dysphraxia new person

Post by Janie » Sun Jun 24, 2018 5:18 pm

Thanks for the reply Tom. We need help in Canada in so many ways. especially healthcare. The school system does not even recognize dysphraxia. Can a speach therapist diagnose dysphraxia?

Tom fod
Administrator
Posts: 1846
Joined: Thu May 12, 2011 10:05 pm
Location: SW UK

Re: Dysphraxia new person

Post by Tom fod » Sun Jun 24, 2018 8:43 pm

Janie

The Dyspraxia Foundation in the UK recognise that obtaining a diagnosis even on the NHS can be tricky and that input of opinion from a neurologist, educational psychologist, occupational therapist and perhaps other medical professionals would all contribute in any path to confirmation.
No harm in asking him/her but it seems quite possible a speech therapist would likely not be familiar. Will be happy if he/she proves me wrong.
Tom
Moderator/Administrator

With a foot full of bullets I tried to run faster but I just hobbled on to the next disaster.
(from Peter and the Test Tube Babies, Foot Full of Bullets)

Janie
New member - welcome them!
Posts: 8
Joined: Sun Jun 24, 2018 1:47 am

Re: Dysphraxia new person

Post by Janie » Mon Jun 25, 2018 7:43 pm

I was dyslexic as a child and very prone to clumsiness. Also left handed so blamed that. I still mix numbers up in sequence. I managed to play keyboards, self taught, on stage for many years. Very creative. Became a t.v. Broadcaster and artist. Pushed myself very hard. I recognize many of the dysphraxia symptoms and it explains a lot. Unfortunately, very long wait to see a neurologist in B.C. Canada and no dysphraxia groups.

Tom fod
Administrator
Posts: 1846
Joined: Thu May 12, 2011 10:05 pm
Location: SW UK

Re: Dysphraxia new person

Post by Tom fod » Tue Jun 26, 2018 10:36 am

Dyslexia and Dyspaxia often exist together. It's possible you have dyscalculia too. Despite our difficulties we are often very driven and exceed expectations.

Sounds like your back problems have set you back I especially think significant change to our lives and daily routine will serve to invalidate a lot of our existing coping strategies.

I did note a Canadian Dyspraxia Foundation so may be worth contacting them to see if they can offer additional advice on how you might best proceed
Tom
Moderator/Administrator

With a foot full of bullets I tried to run faster but I just hobbled on to the next disaster.
(from Peter and the Test Tube Babies, Foot Full of Bullets)

Janie
New member - welcome them!
Posts: 8
Joined: Sun Jun 24, 2018 1:47 am

Re: Dysphraxia new person

Post by Janie » Thu Jun 28, 2018 9:46 pm

I have not received a reply from Canadian contact.

Janie
New member - welcome them!
Posts: 8
Joined: Sun Jun 24, 2018 1:47 am

Re: Dysphraxia new person

Post by Janie » Thu Jun 28, 2018 9:54 pm

Never heard of the math disorder before. I got 27% in math and had to repeat a grade even though my other marks were great. Makes sense now. Thank you.

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