Hypermobility Syndrome

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sheppeyescapee
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Hypermobility Syndrome

Post by sheppeyescapee » Wed Nov 11, 2009 10:07 pm

Hey folks,

I'm currently awaiting blood test results to rule out other things then I'll be assessed for hypermobility syndrome. My dr worked out my beighton score as 7/9 and I meet both major criteria in the brighton criteria. Wondered if there were any others on here with HMS/EDS?

Jack :ball:
I am J, 24, husband, student, diagnosed AS and Dyspraxia.

Liz944
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Re: Hypermobility Syndrome

Post by Liz944 » Wed Nov 11, 2009 10:31 pm

Wondered what HMS was... so looked it up on the internet and found this website.... thought it might be helpful for you...

http://www.hypermobility.org/whatishms.php
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NobodyElseWill
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Re: Hypermobility Syndrome

Post by NobodyElseWill » Fri Jul 23, 2010 9:00 pm

Maybe there's a link between Dyspraxia, HMS and Fibro or M.E
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Osymandus
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Re: Hypermobility Syndrome

Post by Osymandus » Sat Jul 24, 2010 1:06 pm

Some recent research shows that virtually everyone with Dyspraxia also has Benign Joint Hypermobility Syndrome (BJHS) (so we should all be "double jointed" at least ; )

sheppeyescapee
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Re: Hypermobility Syndrome

Post by sheppeyescapee » Wed Aug 18, 2010 12:32 pm

Saw the specialist and they are debating wether it is HMS or EDSIII although the leading experts pretty much agree it is the same thing. They did my beighton score again and I scored as 9/9 :O
I am J, 24, husband, student, diagnosed AS and Dyspraxia.

minilin
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Re: Hypermobility Syndrome

Post by minilin » Wed Jan 12, 2011 9:13 pm

My older sister has hypermobility she was scored a 9.5 she's supe super flexible lol It's like watching a contortionist.

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gherkin001
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Re: Hypermobility Syndrome

Post by gherkin001 » Fri Jan 14, 2011 7:41 am

I used to have hypermobility - after 7 operations I cant over extend anything :)
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salems24
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Re: Hypermobility Syndrome

Post by salems24 » Tue Feb 15, 2011 12:00 pm

I am very flexible in the sense that no one my own age at least (i'm very small and not very strong for my age) can put me in any kind of hold even someone who works in a psychiatric home and is trained to do that kind of thing (to restrain people) could only do 1 type of lock me and would of be unlikely to do that if I hadn't let him put me in the lock in the 1st place this has resulted in many people who know me in college to give me the nickname "the worm"

I thought that this might be a symptom of hypermobility syndrome that I read about on a dyspraxic website but unlike other people are really flexible I can't twist my arm 180 degrees or anything so I am not sure

any thoughts?

kls88
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Re: Hypermobility Syndrome

Post by kls88 » Wed Oct 05, 2011 8:12 am

HI I HAVE HAD DYSPRAXIA SINCE I WAS BORN AND HAVE NOW RECENTLY BEEN DIAGNOSED WITH HYPERMOBILITY AS WELL AFTER EXPERIENCING FREQUENT JOINT PAIN IN BOTH MY HANDS AND LEGS, IM NOT REALLY SURE WHAT ITS ALL ABOUT SO THOUGHT I WOULD HAVE A LOOK ONLINE AND FOUND THIS FORUM. :)

K

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gherkin001
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Re: Hypermobility Syndrome

Post by gherkin001 » Tue May 19, 2015 5:51 pm

I'm an EDSer :)
DySpRaXiA dOeSnT mAkE lIfE hArDeR, jUsT mOrE cOmPlIcAtEd.

dtreatment2016
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Re: Hypermobility Syndrome

Post by dtreatment2016 » Tue Feb 16, 2016 11:16 am

Joints Hypermobility. My story of recovery.

Hi!
I am familiar with these symptoms.
This is the connective tissue disease.
It is called “Joints Hypermobility”.
The joints sore, they become crunchy, soft tissue may ache…
The ligaments are stretched.
Cartilage tissue wears out fast.
I published treatment regimens.
There is information regarding alternative medicine preparations as well.
I’ll tell what can help you!
This is my story of recovery -
Last edited by Tom fod on Tue Feb 16, 2016 6:05 pm, edited 3 times in total.
Reason: URL removed pending assurance this is not advertisement for personal gain

DanAu96
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Re: Hypermobility Syndrome

Post by DanAu96 » Fri Dec 23, 2016 11:41 pm

i have clicks in my joints, my knees and feet hurt after walking for a moderate time. i once suffered from such pain in my knees that i when't to the doctor and said my knee caps were not being held on as strongly as they should and i got physio which helped, i have never been diagnosed with a specific condition that causes this but after reading online these symptoms sound a bit like HS, does anyone know if this is the case?

Reevesj25
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Re: Hypermobility Syndrome

Post by Reevesj25 » Mon Sep 25, 2017 8:53 pm

Hi I have been diagnosed with hypermobility however I have also been reading that dyspraxics have loose ligaments guess it's the same thing at the end of the day. My joints are constantly painful and slipping out of place. I was told at 35 both knees need replacing and the only solution to stop my elbows and ankles dislocating is to -sorry can't think of the word-they break them and set them in one locked position. For me the solution has been braces, exercising so the muscles take the place of the ligaments and using backpack rather than bags in my hands. My daughter who is also dyspraxic has constantly dislocating knee she also has to spend lots of time doing physio to strengthen muscles to try and prevent it as her ligament is so loose it can't hold her knee together.

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Re: Hypermobility Syndrome

Post by Tom fod » Thu Sep 28, 2017 10:28 pm

Hi and welcome.

HS does seem to be one co-occurring condition for some but not sure of the prevalence and no two people are the same!
Tom
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